Understanding Okur-Chung Neurodevelopmental Syndrome


Help us fund research into Okur‑Chung Neurodevelopmental Syndrome (OCNDS), a rare genetic disorder affecting children’s neurological development. Your donation supports scientific research to better understand the condition and develop treatments, while also providing essential resources and support for affected families.

Read more abour this syndrome : https://www.csnk2a1foundation.org/

For French donors: your donation entitles you to tax exemption
For foreign donators: you will soon be able to access tax exemption.

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Aidez-nous à financer la recherche sur le syndrome neurodéveloppemental d’Okur‑Chung (OCNDS), une maladie génétique rare qui affecte le développement neurologique des enfants. Votre don soutient la recherche scientifique pour mieux comprendre cette maladie et développer des traitements, tout en fournissant des ressources essentielles et un accompagnement aux familles concernées.

En savoir plus sur ce syndrome : https://www.csnk2a1foundation.org/

Pour les donateurs français : votre don vous donne droit à une exonération fiscale.
Pour les donateurs étrangers : vous pourrez bientôt bénéficier d'une exonération fiscale.

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Why donate?

The Foundation For Rare Diseases is a foundation for scientific cooperation which aims at accelerating research for all rare diseases.
Your generosity allows us to act concretely to help the 30 000 million people concerned in Europe. 
The Foudnation For Rare Diseases's mission are to :
  • identify the cause of rare diseases and accelerate diagnosis,
  • support the development of treatments,
  • improve patient's and faamilies everyday life.

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Fondation Maladies Rares
96, rue Didot
75014 Paris - France
Phone: +33(0)158142281
Email: contact@fondation-maladiesrares.com

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